2025年10月10日 星期五

比安靜更安靜的那群人~在美國選緘協會2025年會短講

很榮幸加入美國選緘協會(SMA)2025年會主題之一「從跨國視野看選擇性緘默症」。

我的簡介寫著:黃晶晶(Anita Huang)是台灣選擇性緘默症協會以及讓聲音自由計畫創辦人。她的使命是把全世界最好的選擇性緘默症學習資源引進台灣,並營造適合執行實證方法的環境。

這個場次由專精選緘三十多年的Ruth Perednik主持,來自以色列、瑞士、巴西、台灣、中國和美國,共六位代表一起分享當地現況。

我的短講「比安靜更安靜的那群人」說明台灣概況,內容如下:


嗨!我是黃晶晶,我要嘗試說一個屬於台灣的獨特故事。

「安靜順從」是一項傳統美德,但人們愈來愈重視「多元」表達。過去學校裡多是書寫作業,現在口語報告很常見。所以,選擇性緘默症學生的困難,直到最近才凸顯出來。

此時的背景是,孩子生得更少,而特殊需求卻更多。

台灣處在轉折點:新觀念萌發,而舊觀念仍在。就選緘而言,有些人固守習以為常的說話治療或遊戲治療,把孩子送到診所;但愈來愈多人接受行為療法,在家裡和學校等日常生活中,進行小步練習。

值得注意的是,選緘者和家人由下而上的自我倡議。2017年會考,一名考生(化名Sammy)完全凍住的新聞傳遍台灣。之後,家長們創立了台灣選擇性緘默症協會。Rochelle出版了第一本選緘者自述;樹懶將短暫年輕的生命投注於宣導;還有很多人以藝術創作來發聲。

最重要的,大家需要知道選緘有實證療法,老師、家長、治療師真的可以改變孩子的人生!所以,我翻譯了美琪·強生的《選擇性緘默症資源手冊》;並在2018年邀請露絲·佩雷德尼克來台,此後持續辦理課程和工作坊

非常開心,台灣有些老師和心理師,不但成功運用所學,幫到孩子,而且還把經驗寫成研究報告,或以演講來分享

真的很感恩,那些付出遠超過本分的人們,自發努力地學習方法,以及突破框架,撐出孩子所需的彈性空間。然而,這並非制度化或共識的做法。

即便選緘的需求大增,政策支持卻沒有趕上,且受過選緘訓練的專業人士太少。很多選緘孩子不符資格,無法接受早療或學校的心理服務,除非有共病或情況很嚴重。

統計顯示,選緘占台灣特教生的百分比,低到不成比例。

當孩子上了國高中,他們面對的是:很長的上學時間、龐大的課業壓力,以及更少的協助資源,有些孩子形成了懼學或憂鬱症。這很可惜,因為如果他們早些得到幫助,便有機會避開所有這些難題。

雖有實證有效的方法,但環境卻不支持,想來令人傷心。例如,制度並未支持老師家訪;家長往往不被允許入校當主要工作者,且常被誤解為過度保護。

2023年,《特殊教育法》修訂,強調融合教育。這很適合選緘,因為幫助選緘的最佳地方是學校普通班。目前,一小部分的選緘學生有個別化教育計畫(IEP),但很多選緘學生沒有。由於評量和學習方式缺乏合理調整,影響到他們的教育機會。

在有些縣市,選緘特教生有法源能和唯一或惟二能說話的友伴同班,但有些縣市則沒有。在台灣,自學生同樣有資格接受特教服務。

此外,選緘學生極少能有助理或影子助理,雖然這常是進步的關鍵。例如先前提過的Sammy,助理幫忙他持續地小步練習,過去在校完全凍住的他,現在正擔任助教,上台講課!

研究指出,很多台灣的家長感到孤軍奮鬥,而非家長、老師和治療師形成鐵三角,一起合作。

總結,我們一路走來開拓出一些進展,但還有很長的路要走。希望台灣正轉型邁向更好的未來,讓選緘的孩子和家人不再默默受苦。

The Quietest Ones in a Quiet Culture~A Short Talk on Taiwan in the 2025 Selective Mutism Association Annual Meeting

I am honored to join the panel of "Global Perspectives on Selective Mutism: Unique Approaches and Treatment Methodologies Across Borders" in the 2025 Selective Mutism Association Annual Meeting.

I was introduced as follows: Anita Huang is founder of the Selective Mutism Association of Taiwan and the Free Voice Project. Her passion has been bringing the world’s best learning resources of selective mutism to Taiwan and building the environment to implement the relevant methods.

The session I participated in was hosted by Ruth Perednik, who has specialized in SM treatment for over 30 years. Representatives from Israel, Switzerland, Brasil, Taiwan, China, and the United States shared their views.

I gave a short talk on Taiwan, "The Quietest Ones in a Quiet Culture," as follows. 

Hi, I am Anita. I will try to tell a story unique to Taiwan.

Being quiet and compliant is traditionally considered a virtue. But people increasingly value diversity. At school, there used to be mainly written assignments. Now oral presentations are common. So the difficulties of students with selective mutism have only recently been exposed.

This happens against a backdrop of fewer children but more special needs.

Taiwan is at a juncture where new ideas flourish while old ones still linger. Facing selective mutism, some people cling on to the accustomed way of talk therapy or play therapy at a clinic. But more and more people embrace the behavioral approach of small steps taken at home and school.

Noteworthy is the self-advocacy from bottom up. In 2017, a student (let’s call him Sammy) was completely frozen in a nationwide exam. And this became widespread news. Then parents established the SM Association. Rochelle wrote the first autobiography of a sufferer. And Milly gave talks until the last days of her young life. Many others advocated with artworks.

Most important of all, people need to know that there is evidence-based treatment and that teachers, parents and therapists can really change children’s lives. So I translated Maggie Johnson’s Selective Mutism Resource Manual. And in 2018, I invited Ruth Perednik to Taiwan. We have since offered courses and workshops.

I am so happy that some teachers and psychologists in Taiwan have successfully applied what they learned and have even written research papers and given talks to spread the word.

I am so grateful for those who go above and beyond to learn, who think outside the box to create flexibility. However, this is far from common experience.

Despite surging demand, there are not enough policy support and trained professionals. Children with selective mutism often do not qualify for early intervention and psychological services at school, unless they have other comorbidities or are very severe cases.

Statistics shows that selective mutism accounts for a disproportionally low percentage of special needs students in Taiwan.

By the time these children reach high school, they face long school hours, high academic pressure and even less resources. Some develop school phobia or depression. It is such a pity because they could have avoided all the hardships, had they been helped earlier.

It is sad knowing that there are proven effective ways, but the environment is not supportive. Teachers are not encouraged to do home visits, and parents are often not allowed to go into school as keyworkers and are misunderstood as overprotective.

In 2023, the Special Education Act was amended to stress inclusiveness. This suits selective mutism because the best place to help is a regular class at school. Currently, a small fraction of students with selective mutism get IEPs, but many do not. Lack of reasonable adjustments hampers their opportunities in education.

In some districts, not all, it is a legal right to be in the same class with their only one or two talking partners. Homeschooled students are also eligible to special education services. Children with selective mutism very rarely get shadows or assistants even though they can be life changing.

The previously mentioned Sammy, who was frozen at school, after many small steps with the help of assistants, is now teaching as a teaching assistant at university.

Research shows that many parents in Taiwan feel they are fighting a very lonely battle, instead of parents, teachers and therapists working together as a triumvirate.

In closing, we have come a long way, but we still have a long way to go. I hope Taiwan is transitioning to a future where children with selective mutism and their family no longer suffer silently.

Thank you.

2025年7月18日 星期五

【讓聲音自由】學員分享會

 【讓聲音自由】選緘課程「之前學員分享會」圓滿完成!

從翻譯書籍、宣導到推出課程,逐漸看到第一線工作者運用所學幫到孩子。於是我嘗試主辦經驗分享會,希望是旅程中新的里程碑。

7月16日的分享會,三位講者分別從診所治療師、入校/在校工作者,以及家長的角度出發。

香港的社工/治療師陳珮𨯗Peggy服務12歲以下的兒童,她已經幫助很多兒童進步,其實她自己的孩子也有說話焦慮。

Peggy說:「選緘孩子都比較喜歡structured play,有固定的玩法,讓他們可以跟著玩」,以及「我在家長面談都會很intensive,去引導家長用不同方法」。

台灣的諮商心理師高慧軒是入校服務,並協調老師和家長一起幫忙。她生動地描述,在家訪中化身家裡的家具、牆上的蒼蠅,成功跟個案自在聊天。

慧軒心理師說:「對選緘的孩子來講,光是從0跨到1就難如登天,所以需要切得更小、更小,把1步切到0.1甚至0.001步,這樣慢慢地前進。」

我自己則是分享陪伴孩子經歷各種年齡層和嚴重程度的歷程。永遠先看到孩子的優點、追求好玩,以孩子做得到的事為起點,在日常生活中跨出一小步。

我說:「當我們有了這套方法,學會了工具,我們遇到問題就不會慌張,一定有辦法解決」以及「默默的一小步,是人生的一大步」。


好開心這次有好多老師等入校/在校工作者參與,一起朝Ruth老師的理想邁進—老師、家長、治療師合作,在日常生活幫助選緘孩子。